Posts
Blogging Break and G Update
I haven’t written in almost two weeks (or commented, really, so sorry). I’m in another one of those times where there’s a lot going on, but not much I’m wanting to write about. We’re in the midst of some major life-changing decisions for our family, and I’m torn between obsessing over and avoiding the decisions. Anyway,…
Doctor Day
Grayson saw his GI doctor this morning. He has been vomiting a lot again (3 times just this morning) and not only is this awful for him, health and comfort- wise, it’s just been a pain. I’ve been getting him dressed at the last minute before we go anywhere and covering him with a huge…
As Long As It's Healthy
I recently commented on a post in a private FB group of parents with kids with Mitochondrial Disease. The poster basically was expressing her displeasure with pregnant women who respond to the question “Do you want a boy or girl?” with “Doesn’t matter, as long as it’s healthy.” The poster’s complaint with this answer is…
A Very Veggie Fiesta
Grayson’s birthday party was yesterday afternoon. We went small this year- just family, at our house. In addition to grandparents and aunts and uncles who live here, we were so touched that my brother Peter and his wife Megan flew in from Nashville to help us celebrate. My brother Matthew also drove in from Waco.…
2 Years: Happy Birthday Grayson!
Dear Grayson, 2 years! Happy Birthday, sweet boy. Today (and tomorrow at your party) we celebrate YOU and what a special gift you are. You have filled our lives with joy and love these past two years, and continue to touch so many lives with your story, most of who you have never met in…
(Almost) Wordless Wednesday: (Almost) 2!
“You will never have this day with your children again. Tomorrow, they’ll be a little older than they were today. This day is a gift. Breathe and notice. Smell and touch them; Study their faces and little feet and pay attention. Relish the…
Heartache and Hope
Have you ever seen more adorable siblings? Big Brother has been in quite a serious mood today, and little brother/sister (???) is all about his/her hands being all over his/her face. We may have another thumb sucker! We had our 20 week anatomy scan this morning, but before the ultrasound, we met with a…
Mitochondrial Disease Awareness Week
Had you ever heard of Mito before you met or started reading about Grayson? I know I had never heard of the disease until about a year and a half ago. I bet you’ve heard of cancer though. And I bet you’ve heard of all of these too. Grayson, and most other kids with…
Everything's Changed, Yet Nothing's Changed
It’s an interesting thing, having your entire world turned upside down, and yet at the same time, remain exactly the same. This has been a horrible and devastating, normal week. After Tuesday, we still got up way too early, listened to Veggie Tales way too many times, and drove way too many miles to and from…