I haven’t written in almost two weeks (or commented, really, so sorry). I’m in another one of those times where there’s a lot going on, but not much I’m wanting to write about. We’re in the midst of some major life-changing decisions for our family, and I’m torn between obsessing over and avoiding the decisions. Anyway, I hate to be vague, but there’s my excuse for not writing. I’ve had several people ask if we are ok because I haven’t blogged, which I’ll admit is flattering. I do love this space and what a great outlet it is for me.
We’re fine. Since I can’t remember anything past a few days ago, I’ll just start there. Saturday was my birthday. I worked in the morning, and then my parents took me, Ryan, my brother and sister in law to dinner at one of our favorite restaurants.
Unfortunately, after a great birthday, I woke up in the middle of the night with a bad stomach ache. I was hoping I had just eaten too much, but no such luck. By 6 am I was vomiting and couldn’t function. I spent the day in bed- we ended up going over to my parents’ house and my mom took care of me. We spent the night over there because Grayson had his feeding tube procedure this morning and we had to be in the Med Center at 6:00 am. It is a much quicker drive from my parents’ than our house.
Thankfully, I woke up this morning feeling almost back to normal and was able to go to the hospital for the procedure. Hanging out in the pre-op waiting room:
The procedure went great. We were with him when they put him under anesthesia and were able to kiss him goodbye. It’s funny that G’s now been in surgery/anesthesia so many times that we and the nurses and doctors recognize each other. Funny, but kind of sad too. In the PACU (recovery) we are the family whose kid takes forever to wake up- ha! This time, the anesthesiologist tried something different with G that she said had been successful last week on a Mito kid and would make him wake up sooner. He still took a long time, but it was shorter than in the past. Grammie’s singing was what finally made him open his eyes.
So far, the GJ tube is working fine. The button part is HUGE- I guess I’d never seen one and it looks totally different than the G-button. But it doesn’t seem to bother Grayson. He did throw up three times this afternoon- yellow bile-looking stuff. Yuck. I’m hoping it was just because of the anesthesia and this new tube really does cut way back on the vomiting!
This afternoon, Grayson took a 3 hour nap, which meant I got a nap too. It was wonderful! Poor guy is so wiped out- he woke up from his nap around 4:00 and was sound asleep again by 6:30. I’m doing the last of about 47 loads of laundry that had backed up and then I am heading to bed too!