So yeah, “Sweet Dreams” wasn’t exactly the most accurate title of yesterday’s post. “Nightmare” would have been more appropriate. The sleep study was awful, but it’s over. Grayson did exactly opposite of what I thought he would. I thought he would be a mess for the set up (which took about an hour) but then…

We saw an ENT this morning, adding yet another specialist to our list. I was pretty clueless as to why we were going, other than our Mito specialist wanted us to get another opinion on Grayson’s hearing and lack of any speech. We left Katy at 6:45 for our 8:00 appointment. I was having panic attacks…

I just got home from Ryan’s softball game- the girls won 12-0, moving to the third round of playoffs- Go Falcons! There was a family in the stands with a 9 month old (I heard her say his age) and what looked like a 2 1/2 year old. The older child was acting like, well,…

No real coherent post today…just what’s swirling in my brain these days. Dogs. Driving me crazy. I love them, I really do, but they make my life a lot more stressful. And there’s four of them. Sometimes I wish I was one of those people who is ok with giving pets away, but then there’s…

I have had several requests for a summary of our journey with Grayson thus far, and since I have quite a few new readers, I thought it would be a good idea to write one so people can understand where we’ve been and where we are now. Grayson was born full term, at 37 weeks,…

Today we went to a friend’s barn to visit her horses and Grayson LOVED it. I think he mostly loved being outside in the breeze, but he babbled and laughed the entire time we were there (during naptime!). We are considering hippotherapy (horses) for Grayson at some point, and today made me even more excited…

It’s been nearly a week since Grayson got his diagnosis. I am so thankful for the abundant love and support our little family has received. We know people care about and are praying for Grayson around the country (and even the world) and are so grateful. I’ve cried almost every day since Friday. Since we…

Dear Grayson, 19 Months! Counting in months, you are now closer to 2 than you are 1- wow. I can’t believe how time is flying. Developmentally, this has been a big month for you. You desperately want to be on the move and are constantly getting yourself in the crawling position, rocking back and forth.…

(Grayson is 19 months old today, and I have his letter written and ready to post, but no pictures. Poor little dude is sick today and I didn’t really want to put pictures of him screaming or sleeping on the post, which is all he’s been doing today. So if he’s feeling up to it,…