Today was a big milestone for Grayson: he had his first bite of food in 6 years! G stopped eating in the fall of 2011, when he had an NG tube for 7 weeks. As much as we tried, after a year of fighting to drink milk and eat food, only to throw up almost…

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I remember when I was 10 years old I found my first grey hair, a wiry strand sprouting wildly from the top of my head. I actually found it kind of cool and something that made me unique, and I would occasionally find the greys throughout my teenage years and just pluck them out. No…

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I’ve been blogging for seven years, and the archives of this blog contain a huge volume of stories about me and my kids, especially Grayson. When Grayson was really little, and especially leading up to his diagnosis, I documented nearly everything about his life. If you followed along back then, you read details of doctors…

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I hate Saturdays. Today has felt like three days combined into one, with hours and hours of unstructured, unscheduled time. My children (and also me) do not do well with no schedule or structure. The day started out well: we had a Mito family social at a play gym and everyone had a great time.…

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A few days ago, Charlotte’s Pre-K class took a trip to Dewberry Farm, a local “farm” (it’s actually more low-key amusement park than farm). The parents came along, so I took the day off work to hang with my girl all day. The day before, we’d had a high in the upper 80s, sweating in…

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A year after the presidential election that transformed our country and political discussions into a raging dumpster fire, we haven’t made much any progress in returning civility to our discourse. We can’t seem to separate people from their positions, and refuse to see the wide variety of human experiences behind hot-button issues. Nuance gets lost in…

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I write for and am the managing editor of Houston Moms Blog. Since I wrote this post just this week, I’m counting it for #NaBloPoMo. This post is on things not to say to moms with children with special needs. It’s insane what people think are helpful phrases or advice. You can read the post…

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When I get a podcast recommendation, it’s helpful if I also get a specific episode that stands out. This is a list of the individual podcast episodes from the past few months that I highly recommend. What would you add to the list?  NPR’s Embedded: Trump Stories (the whole season) This has been one of my…

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I consume a ridiculous amount of blog posts and articles that are shared to Facebook each day. I always tell people I like Facebook and Twitter so much more than Instagram because I greatly prefer words over pictures. Give me all the words. I learn a lot and am challenged a lot by what I…

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