Dear Nolan, Happy half birthday to my silly, handsome guy! Today you are two and a half, but you have been “correcting” me all day saying you are five and a half. You want to do everything Charlotte does, so it’s no surprise you want to be her age too. Nolan, you are in a…

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Today is Rare Disease Day- I should have done more to raise awareness, like change my FB profile picture or share facts about rare diseases all week. But, I didn’t, and my excuse is I’ve been slightly overwhelmed by the rare disease that we live with all 365 days of the year. Ironically, this morning,…

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  Dear Charlotte, Happy Birthday! You are now a whole hand! This birthday has been much anticipated; we have been talking about you being 5 and your birthday for months now. We celebrated you with a unicorn-themed party with your whole school class and a few close friends at your favorite kids gym. You are…

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I love a year-end recap, and this year I decided to use Tsh Oxenreider’s year end questions to reflect on 2017. 1. What was the single best thing that happened this past year? The highlight of my year was having my writing picked up by some major media outlets and having two blog posts go viral.…

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As he does every year, my dad writes all his grandkids letters from Santa on Christmas. These are some of my favorite words I read all year.  Dear Grayson, Well, here I am again! All I can say is “ho Ho ho”! You have had a really eventful year and I am glad I can…

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It’s almost 9:30, I just got home from a church event, I’m tired and a little bit sick. The last thing I want to do right now is write another blog post, to be honest. But I can’t quit now, on the last day of #NaBloPoMo! This is the second year I’ve written every day…

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A few weeks ago, I asked for suggestions on topics to write on, and my friend B left this comment: I would appreciate any insights you have on balancing (hate the word, cause it’s not a thing, but can’t think of another at the moment) raising a child with special needs alongside your typical children.…

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After I finish #NaBloPoMo (Three.More.Days), the next installment of my 30 Day Challenge Project is to read every day for 30 days. Hopefully will reinstate a habit that I can carry on much longer than the next month. I used to be a voracious reader, but in the past few years, my reading has dropped off…

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We were invited to the Houston Zoo’s Dream Night- a special night for special needs and medical kids and their families.  The lights were beautiful but honestly, it was a really tough night. All 3 kids were really tired, and Grayson fell asleep even before we got there. All three of them are usually in…

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