Posts
19 Months!
Dear Grayson, 19 Months! Counting in months, you are now closer to 2 than you are 1- wow. I can’t believe how time is flying. Developmentally, this has been a big month for you. You desperately want to be on the move and are constantly getting yourself in the crawling position, rocking back and forth.…
Today
It’s been a really long, hard day. Grayson was officially diagnosed with Mitochondrial Disease this morning. Although I am relieved and glad to finally have a diagnosis, there are a lot of emotions, fears, and sadness that I am processing. I’m not really ready to write about it in detail right now, and a glass of…
Feeding Tube Diet Controversy
This week, there’s been a lot of controversy and discussion in the feeding tube world over the K-E Diet. The article claims that brides are using this diet to quickly lose up to 20 pounds in 10 days. This diet involves having an NG tube placed for 10 days, and the women are on continuous…
Made It Through Another Monday
We started off the day with a rough start- vision therapy at 8:00 and Grayson was having some sensory issues- he didn’t want to play with any of the toys his teacher brought, and all he wanted to do was swing. His teacher says G has a major need for motion, as his vestibular system’s…
The Kind of Parent I Wanted/Want to Be
This month, the PAIL theme post is What Kind of Parent Do You Want to Be? Before I had Grayson, I certainly had a picture in my mind of what my life as a mom was going to look like. I had certain ideas and expectations of how my children were going to develop and behave. And…
Getting Over It
This picture (taken about 30 minutes before bedtime yesterday) pretty much sums up my mood and attitude about life the past few days… Meh.Bleh.Ugh. And from my last few posts, I’m sure it’s obvious I haven’t really been in the best place lately. I’ve just been in a funk about Grayson’s stuff, and have had…
Easter Weekend
Easter weekend was beautiful, with picture perfect weather. We ate out with family and friends three times, and were able to sit outside each time. Grayson got a haircut… And looked oh-so-adorable for church in his springtime jon-jons The truth is, we had some really lovely moments this weekend, but overall it was hard. The reality is doing…
I'm Still Here
There is so much going on in our lives right now, but in the past week, I just haven’t felt compelled to write. Usually writing is such an outlet for me, but right now, there are some things I’m just not ready to write about. I’ve been processing information in my head and still am…
Whew
Crisis averted. I love all ya’lls comments to my venting post yesterday and your suggestions on what I should do. Thankfully, I didn’t have to sing at the top of my lungs or drag my screaming baby to annoy the whole doctors office staff. And I got the paperwork. Signed, sealed faxed, delivered. Of course,…