Posts
A Day in Our Life
One of my friends does “Day in the Life” posts every few months, and I’ve wanted to do one for our family for awhile now. Today was typical for us in a lot of ways, but we also had a lot going on, so I thought it was the perfect day to give it a…
It's only Tuesday?!
Is it seriously only Tuesday? This week has been eternally long already. Yesterday, I got a call around lunchtime from the trainer at Ryan’s school that he was having chest pains and shortness of breath and that they had called EMS. Thank goodness for our nurse because I was able to leave right away to…
More Unknowns
Well, the genetic results weren’t exactly what we’d hoped, but I wasn’t surprised. They did not identify what genetic defect is causing Grayson’s disease. What they did show was a LOT of mutations and “Variants of Unknown Clinical Significance”- meaning, not normal, but haven’t been studied to see if they cause disease or not. Some…
Struggling
I’ve been wanting to write this post for over a week now, but any time I’ve had any time to sit and do it, exhaustion wins and I’ve done, well, nothing. I’m really struggling right now, both physically and emotionally. Right now I’m sitting in my room listening to Grayson scream his head off in his…
22 Months!
Dear Grayson, You turned 22 months a few days ago- 22 months on the 22nd and 2 months from being 2- whew! I really can’t believe you are so close to your second birthday. This past month was pretty challenging for several reasons. One, I was away from you for basically 10 days. Although you…
Finally Home
After ten days of traveling, I’m finally home for good. I’ve barely seen my little guy in ten days, and it was so good to cuddle him all afternoon today. I’ve missed my family being in one place, I’ve missed our routine and schedule, I’ve missed my friends, I’ve missed my blog, and I’ve missed…
Busy Week Ahead
I am leaving for North Carolina on Wednesday. Sadly, I missed saying goodbye to my grandfather one last time; he passed away peacefully in Saturday evening. I am trying not to feel guilty or upset that I wasn’t there last week but rather focus on remembering the wonderful memories I have of a man who…
Burrito Boy
Doing a Happy Dance over here tonight- this little dude ATE 10 BITES OF BURRITO when he and I went on a Grayson-Mommy dinner date! He actually ate it, not just tasted and spit it out like he usually does. This is more than he’s eaten in months- I am so proud. I texted this…
Life Updates
Thank you so much for your support and congratulations on our big news. I am 9 weeks and due February 3 (and obviously not good at all at keeping a secret for very long). We saw a strong heartbeat at 6 weeks and if horrible fatigue, hunger, nausea and vomiting are any indication of a…