Posts
Two and A Half
Dear Grayson, Happy Half Birthday my sweet baby boy, who obviously has not a trace of baby left in you. How did that happen? Well, you may not be a baby anymore, but you sure are a handsome little boy. You are sweet, silly, and love to laugh. Your favorites are going to school, riding…
Letters to Charlotte: 2 Months
Dear Charlotte, Happy 2 Month birthday, my sweetness! Although I am a little sad your newborn days are behind us, I am loving every minute this stage you are in. In the last few weeks, you have “woken up” and are an alert, happy, smiley little girl. You started smiling a lot right at about…
A Goal for Grayson
I accomplished a major Mommy milestone (for me, anyway) yesterday: taking both kids to a doctors appointment by myself! I had a ton of anxiety about it beforehand, especially about getting both babies in and out of the double stroller in a parking garage I had never been to before and because Grayson is hard…
Yes, I'm a Mom on my iphone
Have you read the viral blog post Dear Mom on the iphone? It was posted several times on my Facebook newsfeed last week, and I read it, and then immediately felt awful about myself. Yes, I’m that mom who often reads blogs or plays Words with Friends on my phone while I push Grayson on the…
Reality
This weekend, Grayson projectile vomited while we were out shopping, soaking his clothes with vomit and mucous. His tube extension came out multiple times, soaking his clothes with formula. I was called to the nursery at church this morning because they were worried about his stiffness. He isn’t sleeping through the night anymore, and often…
Healthy Girl
Yesterday, this little girl tagged along with her brother to his doctors appointment with the Mito specialist. Dr. K checked her eyes, her reflexes and her tone, all which are perfectly normal. At this time, she thinks Charlotte shows no signs of Mitochondrial Disease, and is healthy. So now, she can just get on…
Plastic Baby Crap
Lately I’ve read a lot of blog posts and have been thinking about simplifying- specifically all the stuff that seems to accumulate and multiply as the days go by. We currently have not one, not two, but THREE storage units holding the contents of our old house- and we are most likely going to have…
Changes
The last six weeks have been amazingly wonderful and incredibly stressful at the same time. On top of adjusting to having two children and the sleep deprivation that goes with a new baby (gah, I’m tired), there are several other life issues we’ve been dealing with as well. I don’t think I’ve written about our…
Clinical Trial Update
As you all know, we had been hoping to get Grayson enrolled in a clinical trial for a drug that would hopefully slow or stop the progression of his disease. But unfortunately, at this time, they are only accepting kids with a confirmed genetic diagnosis of Leighs, which we don’t have. However, the pharmaceutical company…
The Good and the Bad
Thanks to all who commented on my book giveaway. Congratulations to The Nelipot Mommy– hope you enjoy it as much as I did! What a busy weekend we had- for the most part it was great, but not without a little stress to keep things interesting. Saturday I attended a reunion for my Little League…