Are you tired of feeding tube drama yet? Yes? Stop reading. We had to go back to the ER again this morning. We woke up to Grayson crying in his crib, tangled up in his tube, coughing, and sneezing milk. Gross. This is the 3rd time we’ve had to go to the ER to get the…

GI follow up this morning. Ryan and I had already discussed that I was going to insist that we needed to be DONE with the NG tube ASAP. After last week’s fiasco in Savannah, our love-hate relationship with the NG is leaning more towards the hate side. We knew the probable next step is the…

Dear Grayson, Oh, my sweet little Monster Man. What a month it has been! You have now had your tube for a whole month, and for the most part are doing really well with it. I do have to pry the tubing out of your death grip and razor sharp teeth every once in awhile,…

We just got back last night from a week long trip to Charlotte and Savannah. I’ve been in recovery mode all day. Traveling with a 14 month old is hard. Traveling with a 14 month old who has an NG tube, can’t sit in a restaurant high chair, and generally isn’t into entertaining himself is…

Grayson, my mom and I had lunch with my grandparents yesterday at their retirement community in Charlotte, NC. Grayson got fussy during the meal, so we took a walk in the lobby for a few minutes. There was a large poster display of the proposed new dining hall renovation for the community, and post-its for…

Grayson’s genetics appointment was this morning. We’ve had this appointment for months and months, and were anxiously waiting to finally talk to the doctor about all his issues. The past few weeks I’d been worried that we’d come out of the appointment underwhelmed and disappointed with a lack of answers. Well, fortunately that wasn’t the…

No, not YOU. I will always make time for the sweet friends who read my blog and offer so much support. YOU are not who I am talking about. We’ve got a lot going on right now. The approaching holiday season, 5 doctors appointments in the next 3 weeks (including genetics on Thursday), several therapy…

Oh, this brings me so much joy!

For those of you who think I am so strong, that I am handling all this so well, I’m here to tell you if you were a fly on my wall this weekend, you might think differently. I pretty much lost it both Saturday and Sunday. A lot of it is I’m just tired. We…

I just love these sweet little buddies to pieces (and their mommas too!) Larkin (13 months), John (10 months) and Grayson (13 months)