What, you thought the story had ended? That my last post wrapped up nicely with Grayson asleep for the night, waking up all better and ready to get on with his life? ha! No sooner had I pushed “Publish” on my post last night (seriously, within seconds), the screaming started. I sent Ryan into the…

Well, it’s over. It’s been a long, hard two days but we are making it. Whoever said being a mom is like wearing your heart on the outside of your body was right on. My little boy is so brave and is such a fighter, and he doesn’t deserve one second of the pain he…

Today was the PERFECT day for a nap. Pouring down rain outside, dark, and zero plans after a meeting (at our house) we had this morning. And I was sleepy. I had a major craving just to curl up on the couch with my Kindle, to read a few pages, and then quietly drift off…

Dear Grayson, Happy 16 month birthday, Sweet Bubba. We’ve had quite a busy start to 2012… You are working hard on so many things. Everyone was so excited to see you scoot (and lots of people cried too!) and you are all about exploring your world with your hands. You grab everything in reach- my hair, the…

I’ve been loving my new keep-the-house-clean routine. It’s amazing how doing a little each day makes such a huge difference. Although admittedly I’m spending a lot more time cleaning, I am so much more relaxed and am enjoying being at home so much more. I’m really hoping if I keep this up, it will become  a…

Grayson started scooting a little right before his surgery, but we stopped working on it for a few weeks to let the G-tube site heal. Last night he showed off his new skills for his daddy and me, and today I caught it on video. We are celebrating every little inch with our amazing little…

Yesterday morning our family made our way downtown (and got trapped downtown for awhile due to 95% of the streets being blocked off for the marathon) for the United Mitochondrial Disease Foundation support group. Grayson has not been diagnosed with Mito at this time, although we strongly suspect this is what he has. We are…

Wow, I haven’t posted in over a week- not because I haven’t wanted to, but just because I was having major writer’s block and nothing really that interesting has happened to us in the last week. Which honestly, is a good thing. It’s been nice to have a vacation from crisis es! So because nothing…

I was honest with myself today, and it felt good to get some hidden feelings to the surface and out so I could deal with them. I saw my counselor today, and went into the session feeling blah. Usually I go into our sessions knowing what I want to tackle, but today I really didn’t.…

I’m the sort of person who remembers dates, especially year anniversaries of dates. I remember the date of my high school graduation, the date of my first date with Ryan, and the date I found out I was pregnant with Grayson. One year ago today, December 30, 2010, is a date I will always remember.…