It works EVERY TIME!  

I recently commented on a post in a private FB group of parents with kids with Mitochondrial Disease. The poster basically was expressing her displeasure with pregnant women who respond to the question “Do you want a boy or girl?” with “Doesn’t matter, as long as it’s healthy.” The poster’s complaint with this answer is…

Grayson’s birthday party was yesterday afternoon. We went small this year- just family, at our house. In addition to grandparents and aunts and uncles who live here, we were so touched that my brother Peter and his wife Megan flew in from Nashville to help us celebrate. My brother Matthew also drove in from Waco.…

“You will never have this day with your children again.     Tomorrow, they’ll be a little older than they were today.     This day is a gift.     Breathe and notice.     Smell and touch them;     Study their faces and little feet and pay attention.     Relish the…

Have you ever seen more adorable siblings?    Big  Brother has been in quite a serious mood today, and little brother/sister (???) is all about his/her hands being all over his/her face. We may have another thumb sucker! We had our 20 week anatomy scan this morning, but before the ultrasound, we met with a…

      Had you ever heard of Mito before you met or started reading about Grayson? I know I had never heard of the disease until about a year and a half ago. I bet you’ve heard of cancer though. And I bet you’ve heard of all of these too. Grayson, and most other kids with…

It’s an interesting thing, having your entire world turned upside down, and yet at the same time, remain exactly the same. This has been a horrible and devastating, normal week. After Tuesday, we still got up way too early, listened to Veggie Tales way too many times, and drove way too many miles to and from…

On September 11, 2001 the world changed forever. Yesterday, September 11, 2012, my family’s world changed forever. It was a beautiful, clear morning in Houston, not unlike what New Yorkers described eleven years ago before ugly black smoke filled the blue sky. I loaded Grayson in the car and headed to my parents’ house to…

I know you are tired of looking at pictures of my little boy asleep in his crib, but he’s just so sweet when he sleeps and I think it’s so funny how creative he gets with his bumpers every night- I just can’t resist sneaking into his room and snapping away. Also, I am breathing…