So evidently it’s Feeding Tube Awareness week again; I guess I haven’t been paying too close attention to the FTA Facebook page lately, because I only realized it was this week when one of my friends posted about it this morning. Oops. I think I’ve posted enough about Grayson’s feeding tube that you know my…

Sometime in the last few weeks, Grayson stopped sucking his thumb. And not because he wanted to, or because he outgrew the habit. Because he can’t suck his thumb anymore. When he gets tired or hears a song he loves, he gives a thumbs up to the air and brings his thumb to his mouth,…

What a fun, inspiring few days we’ve had! Yesterday, the Mito clinic where Grayson receives his care hosted the author of this precious book The Gift of the Ladybug for a “Ladybug Party” complete with ladybug crafts, snacks, and book reading and signing. Ideally, I would have loved to bring Grayson to the party, but…

As I mentioned in this post, the amazing SRB (who you should definitely be following if you aren’t yet) is hosting a challenge for bloggers to deal with and hopefully get rid of unnecessary clutter in their lives. She’s had an amazing response, showing just how prevalent this issue is. Obviously, clutter is tied to emotions…

Thank you to my wonderful friend Erin for taking these pictures- I absolutely adore them!

We just got home from a 2 night stay at the hospital. Grayson, being the sweet big brother that he is, waited until after his sister’s birthday party before getting sick. This illness came out of nowhere and really took us by surprise; it just once again shows the unpredictability that is life with a…

This morning, we had Charlotte’s first birthday party. It was such a fun time celebrating our sweet girl’s first year of life with some of our favorite people! I wanted the party to be low stress and simple; I chose the morning so we could party hard until naptime and then put both kids straight…

This morning, I opened up my Time.Hop app to discover this post from exactly 3 years ago. Three years have passed since I “came out” on my blog that there was something wrong with our son. I read that post with sadness this morning, and with a lot of if onlys…If only I was right…

I apologize to those of you who have been waiting for an update on Grayson’s surgery last week. I’ve been meaning to write one since Wednesday but Ryan, Charlotte and I all had a mild stomach bug for a few days, which was exhausting, and then we had Charlotte’s birthday hoopla yesterday. My sweet girl…

Dear Charlotte, Happy, Happy Birthday to my baby girl! It really has been a whirlwind year, and I can’t believe we are already at the 12 month point in your life! What an absolutely amazing, joyful experience it’s been adding you to our family- we love you so and are so, so glad you are you!…