Feeding Tube Awareness: How It All Works

So evidently it’s Feeding Tube Awareness week again; I guess I haven’t been paying too close attention to the FTA Facebook page lately, because I only realized it was this week when one of my friends posted about it this morning. Oops.

I think I’ve posted enough about Grayson’s feeding tube that you know my general feeling about it- what a huge blessing it was when he got it and how it continues to be a blessing. I mean, my kid is alive in part because of his tube. Sure it’s annoying because he’s fed continuously, so he’s always attached to it, and sure I get sad and wistful when I see Charlotte enjoying all sorts of foods that Grayson will never taste, but overall, I love his tube.

I probably won’t be posting all week, because honestly, I think you and I would both get bored with seven feeding-tube-related posts. If you are interested in Grayson’s feeding tube story, my 2012 post can be found here and my 2013 post can be found here. But I did want to participate in Day 1, which challenges us to make a video.

These videos show the 2 main functions of Grayson’s feeding tube: feeding and giving medication. I tried to explain the parts of his tube/button and how we set up a feed, and how we give medication through the tube as clearly as possible. And this is real life people; I decided to do this about 20 minutes before getting Grayson ready for bed- I’m in lounge clothes and a ponytail, Charlotte is screeching in the background through most of the videos, and of course we have Veggie Tales playing. Also special thanks to Ryan for being a good sport and filming these oh-so-professional clips.

Enjoy, and please feel free to ask any questions you have about the tube!




  1. andmom on February 10, 2014 at 2:15 am

    Love the videos!

    I'm going to be hearing phantom pump beeps tonight I'm sure .. we haven't used the pump in about 18 months but everytime I hear someone else's I hear phantom pump alarms in my sleep.

  2. J o s e y on February 11, 2014 at 2:56 am

    Wow, this is really interesting to watch!!

  3. Chantal on February 12, 2014 at 11:50 pm

    What an amazing mother you are and what an amazing boy Grayson is. Thank you for the videos.

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