The Truth about Honesty and Other Updates

Well, it’s been nearly a month since I wrote a real post. We’ve had a lot going on, but I just haven’t been motivated to write. I have a lot on my mind, but not much I can write about here. I’ve been hurt by a few comments in the past few months, and it’s made me a little gun-shy to write about certain things. And I am completely aware and accept that writing a blog opens me up for criticism and people’s opinions, and it’s hard to reconcile the two- wanting (and needing) to write, but also protecting myself and my confidence in our family’s decisions.

The thing about honesty is it sometimes leads to really awkward situations. I’ve been making a conscious effort to be more honest with people, meaning, instead of making an excuse, I will tell the real reason why I can’t do something or am going to do something else. Several times, this has backfired- nothing major, but just some uncomfortable conversations or slightly hurt feelings. And I think that maybe it just would have been better to tell a white lie. Sigh.

Finances are particularly hard to be upfront and honest about. This time of year is SO expensive, and incredibly stressful for me. I dread December. Gift giving is not my love language (neither giving nor receiving) and having little extra money to buy gifts makes the whole thing really hard. And being honest why I can’t attend certain events I think leaves me and the other person kind of embarrassed. I wish “I can’t afford it” didn’t have to be such a shameful statement.

But the holidays aren’t all bad. We’ve been singing Christmas songs in the car (my radio is broken and we can’t afford to replace it, ugh) and it’s so cute to hear Charlotte learning my favorites and singing along. We actually decorated the house a few days before Thanksgiving, and that feels good to actually have done it and to see the ornaments I’ve collected over the past few years. I have A LOT of dog ornaments- ha ha. We have a little nativity and I’ve been talking to Charlotte about the Christmas story. Somehow, she’s got it in her head that both Mommy and Santa were at the birth of Christ- who knew?! We have an Elf on the Shelf but he’s still in his box- do I really want to start that craziness when my kid isn’t even 2 yet? I took Christmas card pictures the other day, and I got a great shot within about 3 minutes. No stress. Instead of trying to pose my crazy toddler and kid that can’t sit up on his own, I threw them in matching Christmas jammies and had them cuddle in the bed. Precious. And done. I can’t wait to show you.

I’m struggling with presents for the kids- with the idea of being fair. I’ve bought Charlotte several things- not a ton, because the last thing we need is more clutter in here, but some things I think she’ll really like a play with. She’s really into coloring right now, so I got her an easel, art supplies, and of course, stickers. I also got her a stroller for her baby dolls, a purse, and I think I’m going to get her a potty seat (yikes, here we go). For Grayson, the only thing I’ve bought him is a little toy electric piano. I’m thinking of getting him a guitar too, because that’s what they tell me he likes the best in music therapy. But after that, I’m out of ideas. I can’t afford to buy him stuff just for the sake of giving him presents, but I feel awful that his Christmas morning pile is going to pale in comparison to his sister’s. Logically, I know it’s just the reality of his situation, but it still hurts, and makes me feel guilty. Did I mention gift giving totally stresses me out? There’s some honesty for you.

Anyway, switching topics, here’s a few other updates…

Grayson had a tube change today. The best thing I did was schedule the procedure before the tube broke on its own and forced us to the ER. He is participating in a research study for Mito patients on anesthesia- so more than likely the drug he got today was something different than his usual protocol. I was a little nervous, but he did great- he was actually awake by the time I got back to the PACU- that has never happened before. I didn’t realize that being in the study requires a follow up with his doctor tomorrow as well as blood draws tomorrow and Saturday- ugh. 

He has been on oxygen at night for several weeks now. His nurse reports that he’s sleeping better on it (although on the nights she isn’t here, that doesn’t seem to be the case) and he hasn’t had any seizures since we started, so I guess it’s a positive thing. He hates the nasal cannula though, and even fights me putting it on him in his sleep. Overall, Grayson is doing really well right now. He’s just the sweetest, cuddliest little boy and he loves to laugh. And I do think he’s happy. And we are so excited about a special opportunity he has on Saturday- I will post more about that this weekend!

We got rid of Charlotte’s bottle this week- cold turkey. Eek! Last weekend at the ranch, she refused to drink her bottle because the brand of milk was different than we have at home. So when we got home, after 3 days of no bottle, I asked her if she wanted to say Bye Bye to her bottles. She agreed. She hasn’t made one peep about them until tonight when she requested one. But I told her that remember, we said Bye Bye to the bottle, and that was ok with her. She is having a lot of trouble falling asleep though. We do a story, talk about our day, and prayers and she’s fine until I put her into bed. Then screaming. I’m totally letting her cry it out because the last thing I need to start is bedtime shenanigans. Hopefully this off-and-on screaming for an hour won’t last too long. It’s so weird to me that she is slowly letting go of her “baby” things. She’ll be two next month. Two!

I hope you all are doing well and that these last days of 2014 find you happy, healthy and as stress-free as possible.


  1. allthesunforyou on December 5, 2014 at 3:20 am

    Ugh, gift stress! We have it on the flip side – lots for Matthew, few for Bryson. I hate spending money just to be fair when neither really cares. The last thing we need is more stuff. Brian's parents load them up every year, so I just don't want MORE.

    It sounds like Grayson is doing great! That made my heart dance! Oh… Matthew discovered veggie tales today and I told him about Grayson loving them. He said, “I love them too!”

    Honesty is sooooo good. But I also believe in the handy little white lie to save everyone the trouble. I'm a bad liar so I save them for very special occasions!

  2. Noemi James on December 5, 2014 at 5:26 am

    I used to LOVE giving and receiving gifts. I reveled in buying a ton of stuff for everyone. My parents actually let me shop for them for each other, so I'd go out and get my mom a ton of stuff that my dad could give her and then did the same getting my dad a ton of stuff for my mom to give him. And I put it all on an “emergency” American Express card whose bills went right to them (they knew I was doing this).

    Just writing about that now makes me feel all panicky.

    I used to think gift giving was my love language but my husband's family does not do gifts. At least not for birthdays and holidays. And while it was a hard and sometimes painful couples of years of getting used to it (and assuming my husband didn't care about me), I have now come to not only embrace it but love it. And now MY family's gift giving tradition (mainly to give A LOT) REALLY stresses me out. I HATE it but I have to participate or my mom's feelings will be really, REALLY hurt.

    Luckily I don't have to give my ILs anything (just a few of the regular “photo” gifts like a calendar and ornament with pictures of the kids). My husband and I hold off and get each other one gift (that we've asked for) for our anniversary (which is Jan. 4) so that is nice, but it's more an excuse to get something nice for ourselves and less about gift giving.

    So I totally understand how much you hate gift giving. It's super stressful and I'm glad I don't have as many people to worry about pleasing as most people do.

    I can't wait to hear about Saturday! I shall be waiting with bated breath.

  3. Brittnie on December 5, 2014 at 12:24 pm

    I hear ya girl – holidays can be stressful when money is tight!! Yikes. But I am trying to relax and just enjoy this time of year.

    Honesty is such a good thing & I really love how open you are to the world. Same reason why I am so open on my blog about our past struggles and now Clara's special needs. Yes, it opens us up for criticism and judgement by others, but it really is good for the soul. Awkward at times? Totally. But still good for the soul.

    Cannot wait to see your Christmas pic! Sounds adorable!!

  4. Becky on December 5, 2014 at 2:32 pm

    I'm a horrible gift giver and, as such, hate gift giving season as well. Part of being true to ourselves is being honest. It can be so uncomfortable, but I've found that, for myself at least, (over time) it's less uncomfortable than lying. Though I suppose that's not always true for the person on the receiving end. But I refuse to be responsible for anyone else's feelings; I got enough of my own to deal with 😉

  5. Diane on December 5, 2014 at 4:53 pm

    If you google online there are TONS of great guides for gift giving for the differently abled. I have a few children I buy for each year and have found the guides incredibly helpful! Tons of affordable options too. My friends with special little ones take a lot of pleasure in a nice big pile of items.

  6. jchadden42 on December 5, 2014 at 8:39 pm

    When my children were both very small, I started a tradition of 4 items for Christmas because I knew they'd be given tons of stuff from relatives: something you want, something you need, something to wear, and something to read. They're old enough now that sometimes gifts that are expensive are combined (a smart phone with a Kindle gift certificate), but they have really enjoyed the tradition.

  7. Amber on December 6, 2014 at 3:37 am

    Who in their right mind would ever criticize you or put you down for any of the decisions you make? I think you are fantastic and that your parenting is amazing. And only you know what's best for your family. Sorry someone hurt you.

    Gifts are a disaster for me. I don't like buying them. Even more, I dislike opening them in front of others. The whole thing makes me feel super awkward. So, I want to love celebrating Christmas and know that I should. But gifts literally make the whole season pretty uncomfortable for me. 🙁

  8. Jos on December 8, 2014 at 5:12 pm

    Phew – gift giving is not my love language AT ALL (giving or receiving), so we do very little of it in our house. For example, today is Stella's 3rd birthday – she got a 2pk of Frozen PJs, a little purple Frozen purse with puzzles in it, and a purple bracelet. DONE. I'm literally not buying the kids one single thing for Christmas since we'll be at my parents' and I'm sure they will have plenty of gifts. Don't feel like a grinch for not having some huge pile under the tree! Thankfully both my family & my husband's family are pretty good about not doing the gift stuff either – we draw names and everyone buys ONE $25 gift for the person whose name they have. That's it! Other than that it's just about church & the Christmas story and bam. So much less stress. 🙂

    Also, I'm sorry you've felt criticized – that's not cool. It's hard enough to make parenting decisions without feeling judged for it.

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