Still Here

It’s been awhile. I didn’t take a blogging break on purpose, but the last few weeks have kind of flown by and I’ve done a lot of going to bed at an embarrassingly early hour instead of opening up my laptop in the evening.

And the truth is, I just haven’t had much to say. 2014 is proving to be much kinder than 2013 was and life is pretty great right now. And isn’t it sad that the words flow much easier when things are rough than when life is just coasting along?

And as I typed that last paragraph, I panicked for half a second. Things don’t just cruise along for us very often. The other shoe always drops at some point.

Grayson, my sweetness, is actually doing fairly well right now. His seizures have stayed away, I’m getting great reports from his therapists, and he generally seems content and comfortable most of the time. His vomiting is terrible right now- we’re back to 4-5 times a day- but we deal with it and he deals with it and we move on with our day.

Of course I’m still struggling with Grayson’s life- what it all means. I don’t and probably will never understand why such a precious boy should have such extreme limitations and miss out on so much. But I really do try and focus on the good- like the “mmmm” sound of content he makes when I start singing “This is the Day” and the way he rests his head on my chest while we sing. Or the half smile he gets on his face sometimes when little sister gets right in his face to give him a hug.

And gosh, he’s still just so. dang. cute.

And speaking of cute…Charlotte. Oh, Charlotte. Sometimes I can’t even handle the cuteness. Yes, she’s a MESS, yes, she is the reason I usually am in bed before most of the city’s toddlers, but oh my word, I love my days with this girl.

Her words and phrases are the best. The last few mornings I’ve picked her up out of her crib to about 10 rounds of “Hi” and then a hug. “Hi”, hug. “Hi”, hug…etc. Adorable. She’s also learned how to use the phrase “Uh Oh” in (proper?) context: i.e. she throws her food or her cup on the floor, looks down, then looks at me and “Uh Oh” very dramatically.

I hope I never forget exactly how my precious girl is at this age.

I am doing well too. I’ve lost some weight, finally bought new jeans that fit, taught my first essential oils class and made some exciting summer plans. Oh and Scandal is back, and I may or may not have watched last Thursday’s episode three times. Yep, I’ll take life just as it is right now.

Except I would prefer temperatures in March to be slightly above 30 degrees.


  1. Esperanza on March 5, 2014 at 4:31 am

    It's good to hear from you! I've missed your posts! And I've missed hearing about, and seeing pictures of, your sweet babies. They are just the cutest!

    Congrats on the lost weight and new jeans. I really need to do both those things. Oh… And I'm SUPER EXCITED FOR SUMMER!!!!

  2. Amanda on March 6, 2014 at 9:24 pm

    You are right about your kiddos.. absolutely precious. I hope solutions come for Grayson's vomiting episodes. We deal with it too but oh so much less of it since Samuel had the Gastric Stimulator implanted in Nov 2012. He was able to go from GJ to a G. He still can't tolerate bolus feedings of a larger amount but his GI pain and vomiting (out of his tube) are way less. We do think our boy's fundoplication has loosened up because he had his first by mouth vomiting episode recently which scared him to death. Does Grayson have a Fundo? Have you seen any correlation between the seizure meds and the vomiting? Sam always complains of his tummy right after getting his Tegretol. Will have him and your family in our prayers. God Bless.

  3. Amber on March 7, 2014 at 5:24 pm

    You look amazing! I wouldn't have thought you needed to lose weight, but you are even more beautiful! I need some warmer weather here too!!!

  4. J o s e y on March 7, 2014 at 6:29 pm

    I'm so glad to hear that life is going smoothly for you guys lately! Such a blessing to take a step back and realize you've settled into an easier, happier routine. Yay for you!

Leave a Comment