We got up early (5 am- ugh) this morning because Grayson was supposed to be sleep deprived for his ABR. I was dreading the appointment because I knew getting G into “natural sleep” for the test was going to be a challenge. I had to give him his seizure meds at 9 am, so I gave him some Melatonin (a natural sleep aid) too. It worked- after about 10 minutes of hard-core crying while I rocked him and sang “Jesus Loves Me” he finally fell asleep with the sensors in his ears and on his head.
The test only took 20 or 30 minutes and guess what it showed? Completely NORMAL hearing, in both ears. While I am THRILLED with these results (NO hearing aids- hooray!), I’m also confused and ticked off at the audiologist who spoke to us after his first ABR, while he was still under anesthesia (he had it done during his muscle biopsy and G-button placement). She told us he had “moderate to severe” loss in his left ear, but neither the report nor any subsequent hearing tests has shown that. Just makes me wonder.
The only sad part of this is we will now lose our Auditory Impairment therapy eligibility. The therapist has come with us to 3 doctors appointments, including this morning and we’ve had 3 therapy sessions with her, which I really felt were productive for G’s cognitive development. She does a lot of sounds associated with pictures and objects, which I feel Grayson needs, regardless of his lack of hearing impairment. Plus, I really like her. But she said she would friend me on FB, so it’s all good 🙂
In this journey, honestly, sometimes getting “normal” results isn’t a good thing. When you know something is wrong, you just want the labs and reports to tell you WHY. But in this case, normal hearing is the best news we could have hoped for- one worry we can now cross off our list.