Why can’t people just do their jobs? I am beyond frustrated tonight.

We are applying for a benefits program for Grayson- MDCP. If he qualifies, it will give us tremendous financial support and services, which we desperately need.

There’s a long waiting list for this program- when I called and got Grayson on the list, he was number 23,000ish. No joke. It’s a 4-5 year wait. However, there is a loophole where medically fragile kids (which Grayson should be because of his G-tube) can skip to the top of the list- it involves a one night nursing home stay, probably in another city. Ridiculous, but we’ll do it.

We received the paperwork in the mail a month ago, and it’s due tomorrow. All it is is a form and letter that has to be filled out by one of Grayson’s doctors. Simple right? HAHAHAHAHAHAHA.

Since I feel G’s neurologist knows his condition best and I figured he’s done this before (the wording has to be specific) I asked him to fill it out and was very specific with him and his staff when it was due. This was 3 weeks ago.

I called last Tuesday to make sure it was completed and mailed and they told me it would be “mailed out tonight”- I put that in quotes because it was a lie. When I talked to our MDCP case manager Friday she had not received it. She told me to call again Tuesday (yesterday) to make sure she had it. I then called the neuro and left a message, which they didn’t return until Monday.

Monday- the neuro nurse called me and said it was mailed out Friday afternoon. So if that was true, it should have been in the office no later than Monday. I called Tuesday and left 3 messages, and 2 messages today, and our case manager finally called me back at 5:45 tonight. And guess what? She doesn’t have the paperwork yet.

Oh and the instructions say if it’s not in by the due date (tomorrow) the option to apply for this loophole is forever closed.

PANIC!

But besides the fact that the case manager didn’t return my call until I had left 5 messages, she is very nice and actually told me not to panic. She said since I am in contact with her she will give me an extension until next week.

So tomorrow, I am going to camp out at the neuro office until I can get a copy of the letter and I will fax it over myself. The thing I am worried about is when I talked to the neuro nurse Monday she said I can’t have a copy right now because they’ve sent it off to their medical records scanning company and it won’t be back for a few weeks. I have no idea if that is the truth or not- I am just praying somewhere there is a copy on someones computer or folder.

So needless to say, I’m a little stressed tonight!

And I know, I shouldn’t put up with this crap. But the doctor himself is awesome. Seriously, I don’t think we would be where we are in the diagnosis process if not for him. He’s aggressive, answers questions, and explores every possibility. It’s just that his office staff is horrible. So frustrating.

I seriously wish I had a secretary to deal with paperwork, insurance, and scheduling doctors appointments. I just want to take care of my kid.