Posts
Quick Check-In
I apologize for not updating here in weeks, and for leaving some of you hanging who have been so supportive of our decision to go through with Grayson’s hip surgery. His surgery was ten days ago, and yes, things have been incredibly hard and exhausting, but also have been best case scenario in almost every…
One Week to Go
Thank you all for your prayers and words of encouragement on my last post. As I knew would happen, I had four people contact me whose babies also had choroid plexus cysts- and all went away and were born completely healthy. My worry and anxiety has dramatically decreased, and I’ve just decided not to worry…
More Stress
Today was supposed to be normal. I dropped the kids off at school, went and got a bagel, and headed to my doctors appointment. I’m 19 weeks, 2 days pregnant, and had my anatomy scan this morning. I’ve always had normal anatomy scans, and expected this one to be the same. Of course, I know…
Surgery Update
I sure am glad today is about over. It wasn’t necessarily a bad day, just exhausting. I spent the entire day with Grayson, which I love, and rarely get to do because he goes to school 5 days a week, but wow, he wears me out. Grayson’s school had some flooding due to the heavy…
Happy Easter!
It has been a really fun Easter “season” this year. The weather has been gorgeous in Houston the past few weeks, and Charlotte is at an age where we can really participate in things like egg hunts. I didn’t put any pressure on myself to go all out for Easter- I bought Charlotte a bucket…
Second Trimester
I’ll be 16 weeks tomorrow- how is that even possible? Last Thursday, my doctor made sure I still didn’t want to know the sex of this baby, because she could have told me that day. What? How am I already at that point? And no, I didn’t want to know- being surprised with Charlotte was…
Letters to Grayson: Four and a Half
Dear Grayson, You are now four and a half years old. You may not be a typical four and a half year old, but you sure are my favorite one. I can’t even put into words how much I love and adore you. You have such a softness and gentleness…
A Decision
Yesterday we saw Grayson’s Mito doctor to discuss whether or not we should move forward with hip reconstruction surgery. I was fully expecting Dr. K to make the decision for us- to tell me definitively yes, he needs this, or no, it’s too risky. After waiting 2 hours past our appointment time before we saw…
No Great Options
I think one of the hardest things about raising a kid with medical issues is making decisions for his care that have risks, unknowns, and no real “good” options. We saw an orthopedic surgeon this morning about Grayson’s dislocated hip. He had an X-ray done to see the current state of his hips, since the…