Wow, I haven’t posted in over a week- not because I haven’t wanted to, but just because I was having major writer’s block and nothing really that interesting has happened to us in the last week. Which honestly, is a good thing. It’s been nice to have a vacation from crisis es! So because nothing that interesting has happened, and I don’t really have one topic to write about, I present another bullet point post of randomness…

• Thank you everyone who offered me encouragement and understanding on my last post. It’s nice to know I’m not the only one who gets bored. This week has been better- I am back to making a habit of planning at least one out-of-the-house outing a day. And Tuesday, my amazing friend B came over with her daughter and stayed with Grayson while I went and had lunch with a friend and got a long-overdue eyebrow wax. And even better, they wore the little guy out and he napped most of the afternoon- ahhhhh.
• My friend Esperanza posted this yesterday about an iphone app she had recently started using called Motivated Mom. It’s little pricey for an app ($7.99) but I went ahead a bought it today and I think it’s going to change my life. Each day, it gives a list of chores to do for that particular day. The idea is if you do a little each day you won’t be overwhelmed, and your house will stay clean. Well, let me just say after ONE DAY the house is already noticeably cleaner (and I know this because Ryan actually mentioned the house looking clean when he came home- yay!). And I know it’s totally mental, but having a checklist is SO motivating. It also lets you add chores not on the standard list- reluctantly I added “Poop Scoop” to be assigned weekly- bleh. But with 4 dogs, it MUST be done. One of my “chores” left for today is scrapbook/work on baby book. Ummm…does blogging count? I think yes.
• Speaking of iphone apps, I am still totally addicted to Words with Friends. And I’m worried this doing chores every day thing is going to cut into my WWF time. Priorities.
• And now for a downer. I have decided my very least favorite part of parenting is food. If my thoughts were in a pie chart, FOOD would be a really, really big chunk. And the thing is, my kid eats NOTHING. Literally, nothing. Well, except for the 770 mL of Pediasure being pumped directly into his stomach every day. It’s so, so frustrating, especially when he adamantly refuses the few foods he actually used to enjoy. And him being tube fed is really messing with my head. I have a hard time looking at other babies/toddlers and wrapping my mind around the fact that they get their nutrition through their mouths. That they don’t “eat” all night long while they are sleeping. That they aren’t connected to a backpack or pole most of the day. That they understand the connection between their tummies being hungry and food on their highchair tray satisfying that hunger.
• BUT, on the bright side, we are slowly transitioning to bolus feeds! So far we have done 2 hours on/2 hours off during the day and continuous at night. G has also done two 1 hour feeds (just doubling the rate of the 2 hour feed) and he has kept it down except for a little spit up this afternoon.
• G is having surgery two weeks from today- he’s having a muscle biopsy and getting his G button placed. I am having mixed emotions about the biopsy- I know it’s going to hopefully give us valuable diagnostic information, but ugh, POOR BABY. I am still waiting to hear back from audiology (I’ve left 2 messages with them and no response, grr) to see if they want to do G’s hearing test while he’s under anesthesia. The surgeon was concerned it may be too long a test to keep him under, so I really need to talk to them.
• We are going to a support group meeting on Saturday for families affected by mitochondrial disease. I am excited and nervous to meet people dealing with the same things we are.
• We’ve been doing a lot of swinging lately. Swinging inside, swinging in my arms, and swinging outside at the park. G is most happy when he’s in motion. See? Pure joy.